Asperger Syndrome "Falling Through the Cracks" Part II

I have fought for my youngest son with Asperger Syndrome his entire life.  First with doctors tofind answers to his developmental delays; then with educators for assistive technology and inclusion programs to help him learn and to be independent.  It was an uphill battle to get my son an education and it continues to be to get him job training and employment opportunities.  What my son wants the most! Then there has been the mission to find him mentors and social interaction groups.  Both of which he needs to learn and maintain social skills.  Something those with Asperger's lack or have noticeable delays. 

Through all of this I have encountered bureaucracy and the excuse that Asperger Syndrome 'falls through the cracks' in terms of services and programs.  Even trying to find him a mentor and social situations to work on his social skills, has been much more difficult than I expected after getting a diagnosis and answers to his difficulties. 

It has been extremely frustrating for me over the years.  I never understand why there isn't more to help these young people to become independent and self sufficient.  In this day and age, these highly educated people should know better.  So why isn't more done to 'fill in the cracks' for Asperger Syndrome? 

It's not money.  I've found waivers, funding and have even offered to pay for services myself.  A main problem is not having a set plan or procedure in place.  Then once that is determined, there isn't anyone, group or program, to implement these 'plans'.   I've had to find mentors and social interactions on my own and pay for them myself most of the time.  Which is fine, but what if I hadn't been able to?

My son is doing really well now and has come further than any doctor or educator ever thought he would.  However that is because I never stopped fighting for what he deserved and needed to succeed. 

What about all those kids that don't have anyone to fight for them?  What about them?  That is why I continue to write and talk about this, to hopefully help someone else and fight for all these young people who did not ask to be born with AS and certainly have done nothing to deserve the battles that encounter.  Both academically and emotionally in a society that judges people by the way they look and ridicules a person's 'qurcks' without knowing what it's like to live with Asperger's. 

If my son had a disability such as MR. CP or full Autism, he would have social interaction, activities, understanding along with compassion and a JOB. So what is the real issue or problem in our society, government and  the United States where we live, in regards to Asperger Syndrome? Does anyone know?   I'm just curious.