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Email me anytime: coreen.velvetoversteel@gmail.com

"The Greatest gift that you can give to others is the gift of unconditional love and acceptance!" ~Brian Tracy

All post and stories are the sole property of Velvet Over Steel aka Coreen Trost. I write and create post in order to help others, so share as you want. I just ask that you link back or give VOS credit. Some of the stories are going into a book in progress. Thank You ALL.. for your support and help!!
"If your actions inspire others to dream more, learn more, do more and become more, you are a leader." ~ John Quincy Adams
Showing posts with label aspergers. Show all posts
Showing posts with label aspergers. Show all posts

Sunday, October 2, 2011

Company succeeds at hiring adults with Asperger Syndrome as Game Testers



HIGHLAND PARK, Ill. (AP) — The software testers at Aspiritech are a collection of characters. Katie Levin talks nonstop. Brian Tozzo hates driving. Jamie Specht is bothered by bright lights, vacuum cleaners and the feel of carpeting against her skin. Rider Hallenstein draws cartoons of himself as a DeLorean sports car. Rick Alexander finds it unnerving to sit near other people.
This is the unusual workforce of a U.S. startup that specializes in finding software bugs by harnessing the talents of young adults with autism.
Traits that make great software testers — intense focus, comfort with repetition, memory for detail — also happen to be characteristics of autism. People with Asperger's syndrome, a mild form of autism, have normal to high intelligence and often are highly skilled with computers.
Aspiritech, a nonprofit in Highland Park, Ill., nurtures these skills while forgiving the quirks that can make adults with autism unemployable: social awkwardness, poor eye contact, being easily overwhelmed. The company's name plays on the words "Asperger's," ''spirit" and "technology."
Clients, nine companies in Aspiritech's first two years, have been pleased.
"They exceeded my expectations," said Dan Tedesco of Shelton, Conn.-based HandHold Adaptive, which took a chance on Aspiritech to test an iPhone application. "There is a pride in their product you don't usually see in this type of work."
Aspiritech was founded by Moshe and Brenda Weitzberg after their son, Oran, now 32, was fired from a job bagging groceries. Oran was diagnosed with Asperger's syndrome when he was 14. He now works at Aspiritech.
"He went from failing at bagging groceries to being one of the best software testers on our team," said Brenda Weitzberg.
The Weitzbergs modeled Aspiritech on a successful Danish company called Specialisterne, or "the Specialists." Specialisterne also employs software testers with autism. Its satisfied clients include Oracle and Microsoft.
Other companies in Belgium, Japan and Israel are either hiring or training adults with autism as software testers.
This year, Aspiritech projects $120,000 in revenue, with 60 percent coming from donations and 40 percent from clients. The Weitzbergs hope to raise the client revenue to 50 percent next year.
"There have been a couple of attempts in the U.S. and Aspiritech is the one that's making it," said Scott Standifer of the University of Missouri's Disability Policy and Studies office and the organizer of a national conference on adults with autism and employment.
The exact unemployment rate for adults with autism is unknown, but it's thought to be high, Standifer said.
"We don't know how many adults have autism and, because of that, we don't know their rate of unemployment," he said. "We do know from tracking adults just emerging from high school that they are having great difficulty finding jobs."
A 2009 U.S. Department of Education survey found the employment rate for young adults with autism was on par with that for deaf-and-blind young adults, and well below the rate of those with blindness alone or learning disabilities or traumatic brain injuries, Standifer said.
Since Asperger's syndrome didn't become a standard diagnosis until the early 1990s, many of Aspiritech's software testers were adults when they first learned they were on the autism spectrum. They are pioneers, the first generation of adults with Asperger's.
Katie Levin, 35, was diagnosed in her late 20s with Asperger's. As a child, she'd been labeled as mentally ill.
"Asperger's is not a mental illness," she said. "I definitely feel like I identify with the Asperger's community more than I did with the mental illness community." She tests software and runs Aspiritech's Facebook page and Twitter feed.
Rick Alexander, 24, another tester, has a degree in computer science from the Illinois Institute of Technology and completed an internship developing software for the city of Chicago.
"I have a lot of social anxiety. I don't like meeting new people," said Alexander, who was diagnosed with Asperger's syndrome as a teenager. Like many of the other testers, he lives with his parents.
He'd rather be a software developer than a tester, he said. But selling himself in a job interview is "very difficult for me."
"When you're a child, the school is very concerned with you, the state is very concerned with you," Alexander said. Organizations help adults with autism, he said, but "you need to approach them and for somebody with Asperger's syndrome, it's very difficult to do the approaching."
Most research dollars have gone toward studying children with autism while adults have been neglected, said Molly Losh, an autism researcher at Northwestern University.
"Our vocational structure really isn't suited to funnel people with autism into the workforce," Losh said. Aspiritech "is a magnificent and innovative venture," she said.
Many businesses hire offshore companies to test software. Mike Mestemaker, director of engineering for Schaumburg, Ill.-based ISI Telemanagement Solutions, chose Aspiritech because it offered competitive rates but was based in the United States.
"They dove right in and worked very quickly," Mestemaker said. "They were very detail-oriented people. They really got the job done."
ISI was happy with the work and has hired Aspiritech for a second project, he said.
Aspiritech provides meaningful work (pay is $12 to $15 an hour) in a relaxed environment where bosses never yell if you're late and nobody minds if you need to be alone for a while. What's more, the company is building social skills. The software testers, who are in their 20s and 30s, are trained to work together and they take part in organized outings: miniature golf, bowling, eating at a restaurant.
"We want to improve social skills among people who tend to be socially isolated," said Marc Lazar, Aspiritech's autism specialist. For many of them, software testing is not going to be their lifelong career, Lazar said, "but while they're here they're going to improve their job skills and they're going to learn what kind of behavior is expected on the job and they're going to have more to put on their resumes." ~ AP Medical Writer Carla K. Johnson can be reached at http://www.twitter.com/CarlaKJohnson
Read more at http://www.timesunion.com  

Thursday, July 14, 2011

Facing Our Fears

“Each time we face our fears, we gain strength, courage, and confidence in the doing.” ~www.thinkexist.com

sethbarnes.com

"Acknowledging and overcoming fear are important to personal growth. Fear is one of the basic emotions. Some say that fear and love, its opposite, are the only real emotions. Fear is a contracting emotion. When we feel it we draw into ourselves. If we give in to it or allow it to take over we limit our range of possibilities, we become less than we really are. It is one of the barriers to personal growth." ~www.personal-growth-poetry.com

So many times in my life I have allowed 'fear' to keep me in situations that were not good for me.  Fear of retaliation; Fear of being alone; Fear of what others' think; Fears for my children; and the most popular fear most of us have... the 'Fear of Change'.

Each and every time though, once I faced a fear and got the strength to take the first step in what was usually a major change in my life, I gained confidence and became stronger and stronger with each of the next steps.   Finally realizing the 'process' has helped me to 'take action' sooner, rather than later in the last few years. 

"Nothing in life is to be feared. It is only to be understood."~ Marie Curie

Fear of changes and the unknown are the primary characteristics of Asperger Syndrome.  In fact, those fears can and usually control the lives of someone with Aspergers.

Using what I learned, has allowed me to help my son overcome and deal with his fears, and the anxiety that goes with as well.  Most people don't even know he has A.S. anymore, because he has faced his fears and learned to deal with them also. 

What a 'major change' in both our lives!   

"The fears you don’t face control you. The fears you face, you move beyond." ~Dr. Wayne Dyer


Monday, April 4, 2011

April is National Autism Awareness Month


Designbycher.com

In order to highlight the growing need for concern and awareness about autism, the Autism Society has been celebrating National Autism Awareness Month since the 1970s. The United States recognizes April as a special opportunity for everyone to educate the public about autism and issues within the autism community.

Join the Autism Society in getting involved with the autism community this April.

Attend a Wretches & Jabberers "movievent." The Autism Society is proud to partner with Academy Award®-winning director Gerardine Wurzburg to release her feature length documentary Wretches & Jabberers during National Autism Awareness Month in April 2011. The film will be released through nationwide “movievents,” which will include a screening of the film and a live panel discussion featuring Tracy Thresher and Larry Bissonnette, the film’s featured self-advocates with autism. Check back here for tour updates and don't forget to watch the trailer at http://www.wretchesandjabberers.org/.

Make a difference. Contact your representatives on the state and federal level and ask them to "Vote 4 Autism." For more information about this legislation and to take action to support it, visit http://www.vote4autism.org./

Connect with your neighborhood. Many Autism Society local chapters hold special events in their communities throughout the month of April. But if you can’t find an event that suits you just right, create your own! 1Power4Autism is an online tool that makes it easy to mobilize friends and family and help make a difference.

Autism Society Chapter Events Calendar
1Power4Autism

Watch a movie. Did you know that something that seems as simple as going to the movies is not an option for many families affected by autism? The Autism Society is working with AMC Theatres to bring special-needs families Sensory Friendly Films every month. Click here for more information.

Visit a Carino's Italian Restaurant.
Carino's Italian Restaurant will give a portion of it's proceeds gained throughout the month of April to the Autism Society to help commemorate National Autism Awareness Month and to help families affected by autism. To learn more about Carino's Italian Restaurant, visit http://www.carinos.com/.

Autism Society.org
Asperger’s Syndrome
On the Spectrum
Autism Spectrum Disorders ~By Lisa Jo Rudy
IDEA Fairness Restoration Act

The above article is from the Autism Society Organization. As many of you know my youngest son has Asperger Syndrome and was not given a good prognosis. The doctors were wrong. It took another state and school system, but he did get better! The biggest obstacle in the beginning of his journey, was understanding. Awareness  is the first step to Understanding... which is so important in helping anyone with Autism, Aspergers, Pervasive Developmental Disorders and those individuals on the Spectrum.

Some insightful articles:
Suffering In Silence
Quirky or Autism / Asperger Syndrome
Whiz kid with Asperger's syndrome aims high
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Monday, February 28, 2011

Aspiritech


Aspiritech  is a non-profit organization with a mission to solve the employment challenge of individuals with Asperger's syndrome and high functioning autism (HFA) by aligning their unique abilities with the needs of the business community.

Saturday, November 6, 2010

Too Many Connections in Brain May Explain Autism Learning Disability... By: Deborah Huso

Researchers from the University of California have discovered that autistic children carrying a common autism risk gene show greater brain connections in the frontal lobe when compared with non-autistic children who do not carry the risk gene.

The study, published in the journal Science Translational Medicine, also showed that this increased brain connectivity in the frontal lobe was associated with fewer connections to other parts of the brain, leading researchers to believe that this latest risk gene may be responsible for "rewiring" of the brain.

The gene variant known as CNTNAP2 was also present in some of the non-autistic children in the study, and those children showed greater activity in the frontal lobe with weaker connections from there to other parts of the brain as well. But those kids did not have autism, meaning that this single gene variant is likely not responsible for the disease itself.

"We have known for some time that in most cases a single gene is not causative for autism," one of the study authors, Dr. Susan Bookheimer, professor of cognitive neurosciences at the University of California, told AOL Health. "These risk genes are fairly common." She says autism is caused by a variety of factors, including other gene variants, gene-to-gene interactions, as well as environmental factors.

"The major finding here is in finding a direct link between a gene and the functioning brain in autism," adds Bookheimer. "Another way to think of it is that genes such as this may bias the brain towards a certain mode of information processing--local processing at the cost of long-range interaction and connectivity that we see in autism."

Dr. Isabelle Rapin, professor of neurology and pediatrics at Albert Einstein College of Medicine and a member of the American Academy of Neurology, did not participate in this latest research but is intrigued by the findings. "Autism has multiple causes," she told AOL Health, "and any papers that show another gene related to autism are helpful." She is quick to add, however, that parents of autistic children shouldn't get too excited about this latest study. "It's premature to say it will be useful in diagnosis or treatment."

Dr. Tom Frazier, director of research at the Cleveland Clinic Center for Autism, agrees, noting that the study would have to be repeated using far more subjects, but he told AOL Health he'll be interested to see if this brain abnormality is specific to autism. "Anytime you find a gene variant associated with a condition, you want to know if it's a modifier or a cause," he added. "In this case, I think they've identified a modifier."

Study author Bookheimer is hopeful her team's research will lead to more promising outcomes in the future. "The primary goal here is not diagnosis but rather understanding mechanisms that cause autism," she says. "It is possible in the future we will be able to identify a collection of genes which together lead to severe enough connectivity deficits to cause autism."     This article from AOL.com is by: Deborah Huso

More on Autism:
Autism Causes, Cures, Controversy
Autism Exams and Tests

Sunday, July 18, 2010

Asperger Syndrome "Falling Through the Cracks" Part II


I have fought for my youngest son with Asperger Syndrome his entire life.  First with doctors tofind answers to his developmental delays; then with educators for assistive technology and inclusion programs to help him learn and to be independent.  It was an uphill battle to get my son an education and it continues to be to get him job training and employment opportunities.  What my son wants the most! Then there has been the mission to find him mentors and social interaction groups.  Both of which he needs to learn and maintain social skills.  Something those with Asperger's lack or have noticeable delays. 

Through all of this I have encountered bureaucracy and the excuse that Asperger Syndrome 'falls through the cracks' in terms of services and programs.  Even trying to find him a mentor and social situations to work on his social skills, has been much more difficult than I expected after getting a diagnosis and answers to his difficulties. 

It has been extremely frustrating for me over the years.  I never understand why there isn't more to help these young people to become independent and self sufficient.  In this day and age, these highly educated people should know better.  So why isn't more done to 'fill in the cracks' for Asperger Syndrome? 

It's not money.  I've found waivers, funding and have even offered to pay for services myself.  A main problem is not having a set plan or procedure in place.  Then once that is determined, there isn't anyone, group or program, to implement these 'plans'.   I've had to find mentors and social interactions on my own and pay for them myself most of the time.  Which is fine, but what if I hadn't been able to?

My son is doing really well now and has come further than any doctor or educator ever thought he would.  However that is because I never stopped fighting for what he deserved and needed to succeed. 

What about all those kids that don't have anyone to fight for them?  What about them?  That is why I continue to write and talk about this, to hopefully help someone else and fight for all these young people who did not ask to be born with AS and certainly have done nothing to deserve the battles that encounter.  Both academically and emotionally in a society that judges people by the way they look and ridicules a person's 'qurcks' without knowing what it's like to live with Asperger's. 

If my son had a disability such as MR. CP or full Autism, he would have social interaction, activities, understanding along with compassion and a JOB. So what is the real issue or problem in our society, government and  the United States where we live, in regards to Asperger Syndrome? Does anyone know?   I'm just curious.
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Thursday, July 1, 2010

Social Justice, Autism, Society and Acceptance: With a Little Politics Thrown In- OK Alot of Politics by Elise Butowsky


One of the most wonderful mothers and advocates for Asperger awareness and our childrens' rights, has a blog called Raising Asperger's Kids.  She has written another great article Social Justice, Autism, Society and Acceptance: With a Little Politics Thrown In- OK Alot of Politics  that I wanted to share with all of my followers too.  Thank you, Elise for letting me do another 'shout out'!  You are Amazing!!
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Saturday, May 15, 2010

Accountability and doing what is Right!

I don't have training in writing per say :-), but decided to start writing anyway. Mostly to gain awareness of Asperger Syndrome, children and adults on the autism spectrum. My son (and myself at times) have experienced horrible things from ignorance and preconceived notions.

I never gave up on my son and I continue to break through those walls of excuses to find support and opportunities for him.  Some people think I'm pushy and even emotional at times.  But where would he be if I didn't do all that I have?  I know he would not have graduated from high school, let alone succeeding in college. 

Every time someone rolls their eyes, talks about my son behind my back or makes excuses; it makes me push more and fight harder.  Not what some 'service providers' would have hoped for when they tried to brush me off.   My response to their criticism is that it's their JOB to provide these services and support for those who need a little help and encouragement. 

These jobs, that are paid for with our tax dollars, are not just a 'free resource'.  These are state and federally funded resources set up with the purpose of helping people become productive citizens in our society.  As opposed to a burden on our society. 

I'm not asking for favors or special treatment.  I'm asking them to do their jobs.  Jobs that again, our tax dollars pay for.  I'm also asking that they provide the services and support that the State and Federal websites clearly state are available to all who qualify.  Really?!   I've sent the link attachments along with specific questions and request to vocational rehabilitation workers, as one example, many times over the past 4 years.  With little or NO response; let alone acceptance of any responsibility to help provide the services they are suppose to.  Such as employment assistance, training and support.   Where is the accountability in these jobs and organizations?!

My son wants to work and learn to be independent.  He doesn't want a hand out or disability money.  He just wants the assistance that is suppose to be provided to encourage employers to give these young people a chance and opportunity to succeed.  Such as a job coach and training that doesn't cost the employer time or money.  Just the support both the client and employer are entitled to.  At least according to the state and government websites and documentation I've found.  Nowhere does it say that voc rehab, as just one example, will help you if they want to or if they feel the client is worth it in their personal opinion. 

Besides being accountable in these service provider organizations; Why can't people just do what is Right?  Not just do what they feel like or what they assume to be worth the effort.  I don't believe that's part of their job.  There are 'guidelines' that seem to be just 'words' on paper or a website.  Nothing more in my 20 years of experience dealing with the 'system'.  It is very frustrating, but has made me more determined! 

Recently I was told, once again, that I should just give up.  That I can't expect to count on anyone else to help my son or I.  Believe me, it would be easier.  But does that mean I should give up? No, not in my opinion.

For one I'm not ever giving up on getting my son anything and everything he deserves.  I also feel that 'giving in' to the system by giving up the fight, is one of the reasons people in these positions and organizations are not held accountable.  The frustration and bureaucracy gets to be too much for most people, so they give up.  I have seen it so many times.  I have met several mothers just like me who can't get the services and support their children need to get good employment.  A necessity to their being independent.  My heart goes out to them! 

We are not selfish people by any means.  We only want what is Best for our children.  Just like any other parent should want for their children.  Children who did not ask to be born.  Let alone be born with a disability or disadvantage of any kind.  They did nothing to deserve any of it and it is our job as parents to protect and provide for our Innocent children.  They are Innocent victims of the 'system' and our society.  Special needs parents are not pushy or unreasonable.  We are being accountable and doing what is 'right' in the 'job' we choose to take on.

I am determined to help not only my son, but all the children and young adults like him.  To give them all the opportunities and support they not only need but deserve.  It has become extremely apparent that it has to start with demanding accountability within the 'system'!

So where do I start; who do I contact now?  Where do we as parents go from here?  Advice and opinions are openly accepted and greatly appreciated!
http://velvetoversteel.blogspot.com/2010/05/accountability-and-doing-what-is-right.html
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Saturday, March 27, 2010

Hoping that Autism Awareness brings Compassion and Understanding


April is Autism Awareness month and this link Raising Autism Awareness gives lot of information.  My personal hope, from personal experiences raising a child with a diagnosis in the Autism Spectrum, is that autism awareness will give people the information they need to be more compassionate and understanding to both those with autism and those caring for them.

A blogging friend of mine and fellow Asperger parent has an awesome blog that feeds to mine. She recently responded to another blogger who, along with some of her followers, made fun of an autistic child and criticized the parenting of her caregiver.  My friend wrote an appropriate and informative response:  Snarky Ignorance and Autism Awareness.   I could not have responded any better.

Elise wrote what I have felt and experienced many times while raising my youngest son who has Asperger Syndrome.  Long before he had a correct diagnosis, and even afterwards, I experienced enormous criticism, judgement and even cruelty from people who did not know me or my son, let alone lived in my home, walked in my shoes or lived through our experiences. 

When we moved to Iowa my son and I were both hoping for a fresh start.  Unfortunately that didn't happen and we were very disappointed by that.  In fact it seemed to us that many, but not all of course, were more critical and judgemental.   They found nothing but fault with my son.  Not willing or open minded enough to understand, let alone find any compassion.  Unlike back home, where people looked at how far my son had come, instead of how far he still needed to go. 

Education wise, it was a fresh start for my son.  Even that though took time to overcome the excuses and preconceived attitudes from the previous school.  The current school would ask for records and high school credits and the previous school couldn't provide much more than attendance records.  There were no high school credits to transfer but there were lots of excuses for that and for not having given my son an education the last 3 years he was there. 

The reason my son didn't get an education at his previous school wasn't because they didn't know he had Asperger Syndrome, that answer had come 4 years eariler.  But because they refused to understand Asperger's and provide my son that understanding and the assistance his doctor recommended.  They judged both my parenting and the things he did, that he couldn't help. 

The anxiety and learning disabilities are real for these children and adults.  They do not choose to be different or even difficult.  Again Elise explains this all so well in her recent blog on Raising Asperger Kids.  I wish more people understood that we as autism  parents know what works and doesn't work for our children.  We are the ones that live with the set backs, melt downs, judgements and cruelty that our children experience.  We are doing the best that we can with what we have for our children and grandchildren. 

In many cases, such as the grandmother of the little girl in the blog post, and myself as a single parent, we are doing the best we can 'by ourselves' because others don't know how to deal with it, and have walked away.  The grandmother in the blog, should be commended for not giving up on her granddaughter and sending her away like so many adults do to these autistic children.  She is a hero in my book! 
a message for smockityfrocks
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Monday, February 22, 2010

What wrong with my Son Part? II

My youngest son had obvious developmental delays from being 10 weeks premature. Doctors and teachers thought he had many other things wrong with him, such as ADHD and OCD. He was finally seen by a specialist at University of Nebraska’s Munroe-Meyer’s Institute. That is when he got a correct diagnosis of Asperger Syndrome at the age of 11.

I had my son in speech therapy at age 2, because he didn’t talk yet. He went to a special education pre-school in a town 15 miles away at age 3. He started kindergarten at his home school at age 5. At age 7 we were told there was a better school for him about 40 miles away. It wasn’t. In fact it was a horrible school that treated every child as though the only reason they were behind was because they didn’t want to learn and had behavior problems. It was more like a juvenile detention center for ‘elementary’ children, than a place of learning.

Children with learning disabilities can learn, they just learn differently or need extra help. It was not the right place for my son and certainly not the environment that was going to help him in any way. I pulled him out and caused uproar; evidently no parent had done that before then. Oh and I may have told the administration what I thought.

I found another private school for my son and he thrived for about 1 ½ years there. However the last six months there were internal upheaval with the administration and teachers. That caused the school to came into financial problems and closed. The director that had left six months earlier started her own tutoring business for kids who learned differently. Special individualized reading and writing programs that focused on how each child learned. The concept worked, but it was only an hour or two a day, so my son went back to his primary school the rest of the day.

The principle and teachers were very nice and welcomed Brandon back very warmly. By now he was in the middle of 5th grade and back in regular classes. Still very far behind the rest of his peers, he at least was getting some social exposure. This is the same time when Brandon received the diagnosis of Asperger Syndrome. The school and I finally had an answer and some resources to work with.

Asperger Syndrome explained the lack in social skills and the extremely high anxiety. It also somewhat explained his unique IQ. Math and anything ‘non-verbal’ came very easy for Brandon. He could do 8 part math in his head and he could build incredible creations with just about anything. However, reading and writing were Hugh struggles. Reading was extremely difficult even with the private tutoring. Writing took him 10 times longer than the rest of kids his age so he avoided it at all cost.

Finding ways to motivate him, while keeping his anxiety under control, was very challenging for everyone involved. We all worked together his last year and a half at the elementary school and I felt he made progress. I also felt that people truly cared about him there and learned about Asperger Syndrome in order to help him learn.

Then it was time to go to the junior high school, on the other side of the football field in our small town. That’s where everything changed and I’m afraid not for the better. It was a horrible 3 years going backwards again………………….

http://www.velvetoversteel.blogspot.com/

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