Life changing true stories told to encourage, empower and inspire us!

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"Fill your mind with light, happiness, hope, feelings of security and strength, and soon your life will reflect these qualities." ~Unknown

Email me anytime: coreen.velvetoversteel@gmail.com

"The Greatest gift that you can give to others is the gift of unconditional love and acceptance!" ~Brian Tracy

All post and stories are the sole property of Velvet Over Steel aka Coreen Trost. I write and create post in order to help others, so share as you want. I just ask that you link back or give VOS credit. Some of the stories are going into a book in progress. Thank You ALL.. for your support and help!!
"If your actions inspire others to dream more, learn more, do more and become more, you are a leader." ~ John Quincy Adams
Showing posts with label Asperger Syndrome. Show all posts
Showing posts with label Asperger Syndrome. Show all posts

Thursday, October 6, 2016

Asperger Syndrome short survey


Asperger Syndrome family and friends, please take my survey. Asperger Syndrome Survey: https://lnkd.in/eijteqw
This voluntary survey is for a Communication Research Methods course I am taking at Creighton University. The purpose of this survey is to collect observation data from those who know someone with Asperger Syndrome. The results will be used in my final class paper. Please complete the survey questions honestly, including the demographic questions. All responses are anonymous and will be held in confidence. Thank you to those who participate! Your insight is much appreciated!

Sunday, April 29, 2012

Asperger's: Autism Spectrum Awareness

"These children often show a surprising sensitivity to the personality of the teacher.  They can be taught... but only by those who give them true understanding and affection, people who show kindness towards them  and yes, even humor.  The teacher's underlying attitude influences, involuntarily and unconsciously, the mood and behavior of the child." ~Hans Asperger, 1944

"Autism is not a disease.   It is integral to their identity.  when people say they want a 'cure' to autism, they essentially want to eliminate who they are.  It is a challenge, but certainly not a devastating one.

"I believe they have substantial potential to thrive if only their spirits, talents, and self-esteem were not destroyed by being forced to be "normal". ~Matthew Hafenbrack
"If you judge a fish by its ability to climb a tree, it will live its whole life believing that it is stupid." ~Albert Einstein


"Autism to me, says that I accept my child wholly.  I celebrate his differences and his quirkiness.  I advocate diversity.  I try to empower him.  I am proud of his successes, not matter how small they seem.  I hope he holds onto the compassion he has in his heart into adulthood.  I do not think he needs "fixing".  I am proud that he is my son, and sometimes I am humbled by that very same thought." ~from the blog, Odd One Out


"Imagine a world where Aspergers was the norm, and non-autistics or neurotypicals were the minority.  Let's try it: Those who feel the need to constantly be with a variety of friends are considered fickle.  Those with no propensity for computers and science are called geeks.  Those with no special interest are thought to be ungrounded and lost.  Those without obsessive focus have to take classes to cultivate it." ~from the blog, Aspergirls
"Nobel prize-calibre geniuses often have certain core autistic features at their heart." ~Allan Snyder, director of Sydney University's Centre for the Mind.
"The difference between high-functioning and low-functioning is that high-functioning means your deficits are ignored, and low-functioning means your assets are ignored." ~Laura Tisoncik (from Circle of Mons blog)

Sunday, March 11, 2012

Art Gallery Exhibit: Autism is Not a Disease


March 9, 2012
My son Matthew with his project on Autism


Display depicts the inside of a child with Autism's mind.
'Without it I'm paralyzed by anxiety."
"With it I'm paralyzed by apathy."
Matthew's Project Display; 1 of 20 at the show.
Hello everyone!  We just returned from this event in Chicago and wanted to post some pictures right away and share the awesome message my son, Matthew, had in his exhibit.  I had no idea what his was about until that day and could not be more proud of his display, his message, his talent and most of all his intelligent and heart!!  His younger brother, with a mild form of Autism, was extremely touched.

I will be posting more pictures from the exhibit later this week.   There were over 20 from my son's classmates at the Chicago Institute of Art, also on display.   Amazing talent of varying types were there!

Sunday, October 2, 2011

Company succeeds at hiring adults with Asperger Syndrome as Game Testers



HIGHLAND PARK, Ill. (AP) — The software testers at Aspiritech are a collection of characters. Katie Levin talks nonstop. Brian Tozzo hates driving. Jamie Specht is bothered by bright lights, vacuum cleaners and the feel of carpeting against her skin. Rider Hallenstein draws cartoons of himself as a DeLorean sports car. Rick Alexander finds it unnerving to sit near other people.
This is the unusual workforce of a U.S. startup that specializes in finding software bugs by harnessing the talents of young adults with autism.
Traits that make great software testers — intense focus, comfort with repetition, memory for detail — also happen to be characteristics of autism. People with Asperger's syndrome, a mild form of autism, have normal to high intelligence and often are highly skilled with computers.
Aspiritech, a nonprofit in Highland Park, Ill., nurtures these skills while forgiving the quirks that can make adults with autism unemployable: social awkwardness, poor eye contact, being easily overwhelmed. The company's name plays on the words "Asperger's," ''spirit" and "technology."
Clients, nine companies in Aspiritech's first two years, have been pleased.
"They exceeded my expectations," said Dan Tedesco of Shelton, Conn.-based HandHold Adaptive, which took a chance on Aspiritech to test an iPhone application. "There is a pride in their product you don't usually see in this type of work."
Aspiritech was founded by Moshe and Brenda Weitzberg after their son, Oran, now 32, was fired from a job bagging groceries. Oran was diagnosed with Asperger's syndrome when he was 14. He now works at Aspiritech.
"He went from failing at bagging groceries to being one of the best software testers on our team," said Brenda Weitzberg.
The Weitzbergs modeled Aspiritech on a successful Danish company called Specialisterne, or "the Specialists." Specialisterne also employs software testers with autism. Its satisfied clients include Oracle and Microsoft.
Other companies in Belgium, Japan and Israel are either hiring or training adults with autism as software testers.
This year, Aspiritech projects $120,000 in revenue, with 60 percent coming from donations and 40 percent from clients. The Weitzbergs hope to raise the client revenue to 50 percent next year.
"There have been a couple of attempts in the U.S. and Aspiritech is the one that's making it," said Scott Standifer of the University of Missouri's Disability Policy and Studies office and the organizer of a national conference on adults with autism and employment.
The exact unemployment rate for adults with autism is unknown, but it's thought to be high, Standifer said.
"We don't know how many adults have autism and, because of that, we don't know their rate of unemployment," he said. "We do know from tracking adults just emerging from high school that they are having great difficulty finding jobs."
A 2009 U.S. Department of Education survey found the employment rate for young adults with autism was on par with that for deaf-and-blind young adults, and well below the rate of those with blindness alone or learning disabilities or traumatic brain injuries, Standifer said.
Since Asperger's syndrome didn't become a standard diagnosis until the early 1990s, many of Aspiritech's software testers were adults when they first learned they were on the autism spectrum. They are pioneers, the first generation of adults with Asperger's.
Katie Levin, 35, was diagnosed in her late 20s with Asperger's. As a child, she'd been labeled as mentally ill.
"Asperger's is not a mental illness," she said. "I definitely feel like I identify with the Asperger's community more than I did with the mental illness community." She tests software and runs Aspiritech's Facebook page and Twitter feed.
Rick Alexander, 24, another tester, has a degree in computer science from the Illinois Institute of Technology and completed an internship developing software for the city of Chicago.
"I have a lot of social anxiety. I don't like meeting new people," said Alexander, who was diagnosed with Asperger's syndrome as a teenager. Like many of the other testers, he lives with his parents.
He'd rather be a software developer than a tester, he said. But selling himself in a job interview is "very difficult for me."
"When you're a child, the school is very concerned with you, the state is very concerned with you," Alexander said. Organizations help adults with autism, he said, but "you need to approach them and for somebody with Asperger's syndrome, it's very difficult to do the approaching."
Most research dollars have gone toward studying children with autism while adults have been neglected, said Molly Losh, an autism researcher at Northwestern University.
"Our vocational structure really isn't suited to funnel people with autism into the workforce," Losh said. Aspiritech "is a magnificent and innovative venture," she said.
Many businesses hire offshore companies to test software. Mike Mestemaker, director of engineering for Schaumburg, Ill.-based ISI Telemanagement Solutions, chose Aspiritech because it offered competitive rates but was based in the United States.
"They dove right in and worked very quickly," Mestemaker said. "They were very detail-oriented people. They really got the job done."
ISI was happy with the work and has hired Aspiritech for a second project, he said.
Aspiritech provides meaningful work (pay is $12 to $15 an hour) in a relaxed environment where bosses never yell if you're late and nobody minds if you need to be alone for a while. What's more, the company is building social skills. The software testers, who are in their 20s and 30s, are trained to work together and they take part in organized outings: miniature golf, bowling, eating at a restaurant.
"We want to improve social skills among people who tend to be socially isolated," said Marc Lazar, Aspiritech's autism specialist. For many of them, software testing is not going to be their lifelong career, Lazar said, "but while they're here they're going to improve their job skills and they're going to learn what kind of behavior is expected on the job and they're going to have more to put on their resumes." ~ AP Medical Writer Carla K. Johnson can be reached at http://www.twitter.com/CarlaKJohnson
Read more at http://www.timesunion.com  

Thursday, July 14, 2011

Facing Our Fears

“Each time we face our fears, we gain strength, courage, and confidence in the doing.” ~www.thinkexist.com

sethbarnes.com

"Acknowledging and overcoming fear are important to personal growth. Fear is one of the basic emotions. Some say that fear and love, its opposite, are the only real emotions. Fear is a contracting emotion. When we feel it we draw into ourselves. If we give in to it or allow it to take over we limit our range of possibilities, we become less than we really are. It is one of the barriers to personal growth." ~www.personal-growth-poetry.com

So many times in my life I have allowed 'fear' to keep me in situations that were not good for me.  Fear of retaliation; Fear of being alone; Fear of what others' think; Fears for my children; and the most popular fear most of us have... the 'Fear of Change'.

Each and every time though, once I faced a fear and got the strength to take the first step in what was usually a major change in my life, I gained confidence and became stronger and stronger with each of the next steps.   Finally realizing the 'process' has helped me to 'take action' sooner, rather than later in the last few years. 

"Nothing in life is to be feared. It is only to be understood."~ Marie Curie

Fear of changes and the unknown are the primary characteristics of Asperger Syndrome.  In fact, those fears can and usually control the lives of someone with Aspergers.

Using what I learned, has allowed me to help my son overcome and deal with his fears, and the anxiety that goes with as well.  Most people don't even know he has A.S. anymore, because he has faced his fears and learned to deal with them also. 

What a 'major change' in both our lives!   

"The fears you don’t face control you. The fears you face, you move beyond." ~Dr. Wayne Dyer


Sunday, April 17, 2011

Baby Sign Language

babies-and-sign-language

A fellow blogger who is also a passionate advocate of autism research, asked me to tell my followers about Baby Sign Language. She is part of the team responsible for the creation and development of http://www.babysignlanguage.com/.  Their website was launched with the vision that high quality, functional educational materials should be accessible to all regardless of their financial capacity.

The website is a work in progress but they are very proud of what they are doing. http://www.babysignlanguage.com/ contains:

Free Printable Flash Cards

Free Printable Wall Chart

Free Tutorials

Free Video Dictionary

Almost 4,000 strong Facebook Community (This is a wonderfully active community that has given birth to many friendships).

We both believe that baby sign language is a viable tool to open a window of communication in certain autism profiles.  I have heard wonderful and encouraging stories from many parents. Every digital and downloadable resource they have created is 100% free. However they don't expect for this to be a fix-it-all, but they sincerely hope it becomes one more resource to make the journey easier for thousands of parents facing the challenges of autism.

Please visit www.babysignlanguage.com or contact my friend Mey Lau @ mey.lau@babysignlanguage.com
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Monday, April 4, 2011

April is National Autism Awareness Month


Designbycher.com

In order to highlight the growing need for concern and awareness about autism, the Autism Society has been celebrating National Autism Awareness Month since the 1970s. The United States recognizes April as a special opportunity for everyone to educate the public about autism and issues within the autism community.

Join the Autism Society in getting involved with the autism community this April.

Attend a Wretches & Jabberers "movievent." The Autism Society is proud to partner with Academy Award®-winning director Gerardine Wurzburg to release her feature length documentary Wretches & Jabberers during National Autism Awareness Month in April 2011. The film will be released through nationwide “movievents,” which will include a screening of the film and a live panel discussion featuring Tracy Thresher and Larry Bissonnette, the film’s featured self-advocates with autism. Check back here for tour updates and don't forget to watch the trailer at http://www.wretchesandjabberers.org/.

Make a difference. Contact your representatives on the state and federal level and ask them to "Vote 4 Autism." For more information about this legislation and to take action to support it, visit http://www.vote4autism.org./

Connect with your neighborhood. Many Autism Society local chapters hold special events in their communities throughout the month of April. But if you can’t find an event that suits you just right, create your own! 1Power4Autism is an online tool that makes it easy to mobilize friends and family and help make a difference.

Autism Society Chapter Events Calendar
1Power4Autism

Watch a movie. Did you know that something that seems as simple as going to the movies is not an option for many families affected by autism? The Autism Society is working with AMC Theatres to bring special-needs families Sensory Friendly Films every month. Click here for more information.

Visit a Carino's Italian Restaurant.
Carino's Italian Restaurant will give a portion of it's proceeds gained throughout the month of April to the Autism Society to help commemorate National Autism Awareness Month and to help families affected by autism. To learn more about Carino's Italian Restaurant, visit http://www.carinos.com/.

Autism Society.org
Asperger’s Syndrome
On the Spectrum
Autism Spectrum Disorders ~By Lisa Jo Rudy
IDEA Fairness Restoration Act

The above article is from the Autism Society Organization. As many of you know my youngest son has Asperger Syndrome and was not given a good prognosis. The doctors were wrong. It took another state and school system, but he did get better! The biggest obstacle in the beginning of his journey, was understanding. Awareness  is the first step to Understanding... which is so important in helping anyone with Autism, Aspergers, Pervasive Developmental Disorders and those individuals on the Spectrum.

Some insightful articles:
Suffering In Silence
Quirky or Autism / Asperger Syndrome
Whiz kid with Asperger's syndrome aims high
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Wednesday, March 9, 2011

Believing in Me!

 "You are in charge of your feelings, beliefs, and actions. And you teach others how to behave toward you. While you cannot change other people, you can influence them through your own behaviors and actions. By being a living role model of what you want to receive from others, you create more of what you want in your life." ~Eric Allenbaugh


annasyogaspace.blogspot.com

6 years ago I was still living back home in Nebraska. I say back home like it’s far away and that's funny because it’s just the next state over. In fact it’s only an hour from where I live now. However at times, it has felt like half way around the world from a 'small town' in Iowa.

The first few years here were incredibly hard for me. I had given up my home, my friends and a job I loved, with co-workers who were like family. What was even worse, I had given up my security for another person. That was a Hugh mistake that I will never make again. I now know that someone who truly loves you, wouldn't want you to give up everything; or anything that makes you happy for that matter.

I wanted to ‘believe’ all the ‘words’ and promises; that someone really wanted to 'share' lifes ups and downs and have a 'balanced' relationship.  I even convinced myself that it was God’s plan because this person came into not only my life, but also my son’s. At a time when I felt he really needed a man in his life. So I only saw what I wanted to see and I ignored my own gut. I wanted to ‘believe’ I was doing the right thing.

Moving to Iowa has worked out extremely well for my son and that I do believe was God’s plan. However I should have thought of myself back then and planned my move more carefully. But we live and learn and I have learned so much!

I learned that no one can take care of me better than I can take care of myself. That no one has the right to be manipulative and controlling; no matter what they’ve been through or how much they think you owe them. I have learned that I am stronger, smarter and braver than I ever imagined. I didn’t need anyone to help me with my son; I could do it on my own all along. I just needed to ‘believe’ in ME. 
"Self-confidence and a belief in yourself is a must. To instill confidence in others, you first must have confidence in yourself." ~Byron & Catherine Pulsifer, from Good-bye Manager, Hello Coach!
I want to say a special thank you to Shanae, @ Triumph and Tears for entering one of my previous post in her Contest.  Visit her Great blog when you can. :-)Bookmark and Share

Monday, February 28, 2011

Aspiritech


Aspiritech  is a non-profit organization with a mission to solve the employment challenge of individuals with Asperger's syndrome and high functioning autism (HFA) by aligning their unique abilities with the needs of the business community.

Saturday, November 6, 2010

Too Many Connections in Brain May Explain Autism Learning Disability... By: Deborah Huso

Researchers from the University of California have discovered that autistic children carrying a common autism risk gene show greater brain connections in the frontal lobe when compared with non-autistic children who do not carry the risk gene.

The study, published in the journal Science Translational Medicine, also showed that this increased brain connectivity in the frontal lobe was associated with fewer connections to other parts of the brain, leading researchers to believe that this latest risk gene may be responsible for "rewiring" of the brain.

The gene variant known as CNTNAP2 was also present in some of the non-autistic children in the study, and those children showed greater activity in the frontal lobe with weaker connections from there to other parts of the brain as well. But those kids did not have autism, meaning that this single gene variant is likely not responsible for the disease itself.

"We have known for some time that in most cases a single gene is not causative for autism," one of the study authors, Dr. Susan Bookheimer, professor of cognitive neurosciences at the University of California, told AOL Health. "These risk genes are fairly common." She says autism is caused by a variety of factors, including other gene variants, gene-to-gene interactions, as well as environmental factors.

"The major finding here is in finding a direct link between a gene and the functioning brain in autism," adds Bookheimer. "Another way to think of it is that genes such as this may bias the brain towards a certain mode of information processing--local processing at the cost of long-range interaction and connectivity that we see in autism."

Dr. Isabelle Rapin, professor of neurology and pediatrics at Albert Einstein College of Medicine and a member of the American Academy of Neurology, did not participate in this latest research but is intrigued by the findings. "Autism has multiple causes," she told AOL Health, "and any papers that show another gene related to autism are helpful." She is quick to add, however, that parents of autistic children shouldn't get too excited about this latest study. "It's premature to say it will be useful in diagnosis or treatment."

Dr. Tom Frazier, director of research at the Cleveland Clinic Center for Autism, agrees, noting that the study would have to be repeated using far more subjects, but he told AOL Health he'll be interested to see if this brain abnormality is specific to autism. "Anytime you find a gene variant associated with a condition, you want to know if it's a modifier or a cause," he added. "In this case, I think they've identified a modifier."

Study author Bookheimer is hopeful her team's research will lead to more promising outcomes in the future. "The primary goal here is not diagnosis but rather understanding mechanisms that cause autism," she says. "It is possible in the future we will be able to identify a collection of genes which together lead to severe enough connectivity deficits to cause autism."     This article from AOL.com is by: Deborah Huso

More on Autism:
Autism Causes, Cures, Controversy
Autism Exams and Tests

Friday, August 20, 2010

Happy Aloha Friday!

Hello again!  I'm so glad it's Friday.  I'm exhausted!  I've been so busy this week.  Too busy to even visit blogs this week, work on mine or even thank my commenter's.  My Apologies!  It didn't help that the Internet has been up and down all week.  Of course it's been down when I've had a few moments.  That's the way it goes sometimes! :-)

I came across this Happy Aloha Friday post last week, and since I LOVE Hawaii... I thought I would do it again.  Remember 'Eye Girl' with 'Half Full Friday' is on hiatus for her wedding this month.  I will still include what I'm happy for this week later in this post.

If you want to join in the fun? Post your own question on your blog and leave your link at the Aloha Friday post at An Island Life. Then you can visit the other participants if you wish...It’s a great way to make new bloggy friends or see what people are thinking about this week and join in a conversation or two if you like.

Here is my question:  If you won the lottery, would you continue to work?  Why or Why Not and in what way? 

My answer:  I would work, just not my current job.  I would follow my dreams and passion with with a step by step plan to reach my goals.  Instead of waiting for the 'right time' as I need to currently.   

My dream job would be to really learn to write and present 'storyteller' style in order to encourage and inspire people.  A top priority would be helping 'Special' children who have no one to 'fight' for them.  With an extra focus on Asperger Syndrome Children and Awareness.
"Knowledge of what is possible is the beginning of happiness." - George Santayana
Now for my regular Half Full Friday followers, here is what I'm Happy for this week:
  • I am very happy that my son is so excited about his second year of college starting soon.
  • I am happy that it was much cooler this week and I could walk more!
  • I am happy I got to go to the lake with friends again last weekend!
  • I am happy that the guys are back this week at work & that students will be back on Monday.  It's been way to quite for me.
  • I am happy for a small family gathering this week!
  • I am very happy with 'myself' this week! :-)
"If you want to be happy, set a goal that commands your thoughts, liberates your energy, and inspires your hopes." - Andrew Carnegie
Love & Hugs Always,
Coreen
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Sunday, July 18, 2010

Asperger Syndrome "Falling Through the Cracks" Part II


I have fought for my youngest son with Asperger Syndrome his entire life.  First with doctors tofind answers to his developmental delays; then with educators for assistive technology and inclusion programs to help him learn and to be independent.  It was an uphill battle to get my son an education and it continues to be to get him job training and employment opportunities.  What my son wants the most! Then there has been the mission to find him mentors and social interaction groups.  Both of which he needs to learn and maintain social skills.  Something those with Asperger's lack or have noticeable delays. 

Through all of this I have encountered bureaucracy and the excuse that Asperger Syndrome 'falls through the cracks' in terms of services and programs.  Even trying to find him a mentor and social situations to work on his social skills, has been much more difficult than I expected after getting a diagnosis and answers to his difficulties. 

It has been extremely frustrating for me over the years.  I never understand why there isn't more to help these young people to become independent and self sufficient.  In this day and age, these highly educated people should know better.  So why isn't more done to 'fill in the cracks' for Asperger Syndrome? 

It's not money.  I've found waivers, funding and have even offered to pay for services myself.  A main problem is not having a set plan or procedure in place.  Then once that is determined, there isn't anyone, group or program, to implement these 'plans'.   I've had to find mentors and social interactions on my own and pay for them myself most of the time.  Which is fine, but what if I hadn't been able to?

My son is doing really well now and has come further than any doctor or educator ever thought he would.  However that is because I never stopped fighting for what he deserved and needed to succeed. 

What about all those kids that don't have anyone to fight for them?  What about them?  That is why I continue to write and talk about this, to hopefully help someone else and fight for all these young people who did not ask to be born with AS and certainly have done nothing to deserve the battles that encounter.  Both academically and emotionally in a society that judges people by the way they look and ridicules a person's 'qurcks' without knowing what it's like to live with Asperger's. 

If my son had a disability such as MR. CP or full Autism, he would have social interaction, activities, understanding along with compassion and a JOB. So what is the real issue or problem in our society, government and  the United States where we live, in regards to Asperger Syndrome? Does anyone know?   I'm just curious.
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Thursday, July 1, 2010

Social Justice, Autism, Society and Acceptance: With a Little Politics Thrown In- OK Alot of Politics by Elise Butowsky


One of the most wonderful mothers and advocates for Asperger awareness and our childrens' rights, has a blog called Raising Asperger's Kids.  She has written another great article Social Justice, Autism, Society and Acceptance: With a Little Politics Thrown In- OK Alot of Politics  that I wanted to share with all of my followers too.  Thank you, Elise for letting me do another 'shout out'!  You are Amazing!!
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Saturday, May 15, 2010

Accountability and doing what is Right!

I don't have training in writing per say :-), but decided to start writing anyway. Mostly to gain awareness of Asperger Syndrome, children and adults on the autism spectrum. My son (and myself at times) have experienced horrible things from ignorance and preconceived notions.

I never gave up on my son and I continue to break through those walls of excuses to find support and opportunities for him.  Some people think I'm pushy and even emotional at times.  But where would he be if I didn't do all that I have?  I know he would not have graduated from high school, let alone succeeding in college. 

Every time someone rolls their eyes, talks about my son behind my back or makes excuses; it makes me push more and fight harder.  Not what some 'service providers' would have hoped for when they tried to brush me off.   My response to their criticism is that it's their JOB to provide these services and support for those who need a little help and encouragement. 

These jobs, that are paid for with our tax dollars, are not just a 'free resource'.  These are state and federally funded resources set up with the purpose of helping people become productive citizens in our society.  As opposed to a burden on our society. 

I'm not asking for favors or special treatment.  I'm asking them to do their jobs.  Jobs that again, our tax dollars pay for.  I'm also asking that they provide the services and support that the State and Federal websites clearly state are available to all who qualify.  Really?!   I've sent the link attachments along with specific questions and request to vocational rehabilitation workers, as one example, many times over the past 4 years.  With little or NO response; let alone acceptance of any responsibility to help provide the services they are suppose to.  Such as employment assistance, training and support.   Where is the accountability in these jobs and organizations?!

My son wants to work and learn to be independent.  He doesn't want a hand out or disability money.  He just wants the assistance that is suppose to be provided to encourage employers to give these young people a chance and opportunity to succeed.  Such as a job coach and training that doesn't cost the employer time or money.  Just the support both the client and employer are entitled to.  At least according to the state and government websites and documentation I've found.  Nowhere does it say that voc rehab, as just one example, will help you if they want to or if they feel the client is worth it in their personal opinion. 

Besides being accountable in these service provider organizations; Why can't people just do what is Right?  Not just do what they feel like or what they assume to be worth the effort.  I don't believe that's part of their job.  There are 'guidelines' that seem to be just 'words' on paper or a website.  Nothing more in my 20 years of experience dealing with the 'system'.  It is very frustrating, but has made me more determined! 

Recently I was told, once again, that I should just give up.  That I can't expect to count on anyone else to help my son or I.  Believe me, it would be easier.  But does that mean I should give up? No, not in my opinion.

For one I'm not ever giving up on getting my son anything and everything he deserves.  I also feel that 'giving in' to the system by giving up the fight, is one of the reasons people in these positions and organizations are not held accountable.  The frustration and bureaucracy gets to be too much for most people, so they give up.  I have seen it so many times.  I have met several mothers just like me who can't get the services and support their children need to get good employment.  A necessity to their being independent.  My heart goes out to them! 

We are not selfish people by any means.  We only want what is Best for our children.  Just like any other parent should want for their children.  Children who did not ask to be born.  Let alone be born with a disability or disadvantage of any kind.  They did nothing to deserve any of it and it is our job as parents to protect and provide for our Innocent children.  They are Innocent victims of the 'system' and our society.  Special needs parents are not pushy or unreasonable.  We are being accountable and doing what is 'right' in the 'job' we choose to take on.

I am determined to help not only my son, but all the children and young adults like him.  To give them all the opportunities and support they not only need but deserve.  It has become extremely apparent that it has to start with demanding accountability within the 'system'!

So where do I start; who do I contact now?  Where do we as parents go from here?  Advice and opinions are openly accepted and greatly appreciated!
http://velvetoversteel.blogspot.com/2010/05/accountability-and-doing-what-is-right.html
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Friday, April 2, 2010

When the Autistic Want to Work

I fight with Voc Rehab and other organizations, for employment and training for my son with Asperger Syndrome all the time. The excuse is that his AS falls through the cracks for services. Very frustrating to me when I have a son who WANTS to WORK and all anyone can tell me is that he should apply for disability. He doesn't want to. He wants to work!

In addition to wanting to be independent, working also helps strengthen not only his jobs skills, but his self-esteem and social skills as well. I usually find his summer job myself with the help of great friends.

I have heard lots of excuses over the years; but none of them I accept. No excuses! These kids and adults can contribute to society and they will with more awareness and people like the founder of Specialisterne.  This company only hires people with Autism.

I saw the story about the Specialistern last night on ABC News.  What a wonderful father, family and story!  I have thought about that a lot, creating something like this for my son.  Some of the people that now work for this company have never had a job or have not had a decent job for 20 years.  So sad when those who want to work and can contribute considerably to sociaty are kept out of the work force.

When the Autistic want to work they should be given every opportunity and assistance possible!
We need more people and more awareness of the value of those brilliant people with Autism and Asperger Syndrome.  April is Autism Awareness month and hope that awareness brings a lot of new opportunities for people like those at Specialistem and my son!
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